A Chiari Wellness Program Designed by a Certified Health Coach with Chiari

I am unsure if this post will reach anyone after all these years. Boy, a LOT has changed for me! I would like to pose a question to my Chiari community: Would you be interested in a Chiari Wellness Program directed by a Certified Health Coach who also happens to have Chiari? The focus would be on fitness (from beginners to advanced), Neuro-Nutrition (TM), guided meditation, and a private supportive community devoted to Chiarians attempting to live their lives and regain their health? Please let me know your thoughts.

Why Mention Pelvic Floor Prolapse?

I would like to address why I mentioned the PFP or bladder prolapse in my last post. Before I ever got pregnant, I went to a specialist in Ehlers Danlos. I have both Mitral and Tricuspid Valve prolapse, with very visible veins through my skin. My father died from heart related issues in his mid 40's which he was plagued with since childhood. Many Chiarians are aware that EDS and Chiari can co-exist. I was concerned about the vascular form due to my history. The expert basically told me that without genetic testing, he could only speculate. His opinion was that I most likely do not have EDS, or if I do it is very mild, and to continue on with my life plans. My point... bladder prolapse could be a result of EDS (weakened connective tissue). Of course women have this issue who do not have EDS. I did just have my third child! But, given this forum, I thought it pertinent to mention. As with every single symptom we deal with on a daily basis, it is a guess as to the origin: I feel nauseous today. Is it Chiari or did I eat something bad, or perhaps I have the beginnings of a migraine, maybe its an ulcer...

A moment to reflect...

Finally, a moment of peace! I thought I would catch this puppy up and apologize to anyone that did not receive a response from me. I have been in a baby fog. My son was born on Nov. 21, 2012 (day before Thanksgiving) in a very dramatic and harrowing ordeal. We are both fine now (sort of). Anyway, he ended up being a very colicky baby. My husband works 12 hour days with an additional 2 hour commute. Having just moved right before falling preggo, I have no family or friends to help. I was alone. The first 3-4 months sucked!! I am not exactly a spring chicken anymore! Finally, my pediatrician put him on Zantac and told me to stop all dairy as I am breastfeeding. It has been a total game changer! I have a whole new son :)) So I have spent the last 3 weeks catching up on sleep (as we all know, chiarians need more sleep than the average bear) and am ready to take this blog on again. I still have an enormous amount of responsibility outside of this so please be patient and make sure that you read the whole blog, as most questions are answered within. I just wanted to send my love out to all those searching for answers. This is a hard road and if my blog can help at least start the conversation about alternatives to the caveman hatchet surgery still barbarically performed on many unnecessarily, then I am a very happy woman! My Chiari after baby... Spring is here in Indiana; always a bitch. I have headaches at least 3 times a week. I cannot take my Axert, which always seemed to help, due to nursing Z (my son). I am relying heavily on Tylenol and, at its worst, 800mg Ibuprofen. So far it has worked alright. The only other real crapper is that I had pelvic floor prolapse of my bladder. That is so awful! I cannot even believe I am admitting this on a public forum. It is embarrassing and almost shameful. Definitely something women do not talk about. But, as a chiarian, I know you all are quite use to embarrassing topics in regards to our bodies. Besides, I want to take some of the shame out of prolapses. My doc put me on estrogen cream and it has done wonders. I guess breastfeeding sends you into a false menopause causing low estrogen. She said that most likely I will make a really nice recovery once I stop. Good to know. Well, have to run. I hope the fact that I have been off living my life is a source of inspiration for anyone out there wondering if they will ever be normal again. The key to chronic pain is positive thinking. Definitely not easy but, if you can master your mind, you can live past the pain :) Much love, Lori

HUGE UPDATE!

I am the absolute worst at communication, so I apologize for the delay in information. A lot has happened in seven months. First, I do not have EDS or if I do it is very mild according to the South Bend doc. This information allowed me to continue on with my plans for pregnancy. My husband and I were to start Clomid (fertility drug) in March but God stepped in and saved us the expense. I am currently 21 weeks pregnant with a little boy!! I am so excited!!! I already have two girls through a previous relationship and relish the idea of a son. My hubby is over the moon :) We are calling him our "little monster" since he has always measured about a week ahead of schedule. It has been a blast finding monster themed clothing and nursery items. This has not been the easiest pregnancy but, then again, I am a good decade older than I was the last time I was with child (my youngest will be 12 next month and my eldest will be 18 in 2 1/2 months). I cannot remember if I ever blogged about all of the losses my husband and I endured before this baby. It pretty much tore our marriage apart and we separated for awhile three years ago. But found our way back to each other after six months and we are stronger than ever! We decided that we would try one more time before my bio clock ticked out; if it didn't work then we lived out our lives without regret. Well, it worked! I have been exhausted but regulating my hashimoto's (thyroid disease) has been a challenge. I think I slept through the first four months. Then there is the heart issue. It drives me bonkers. I can feel it flopping around on me in there. It never feels like I have enough oxygen. Finally, there are the headaches. They are almost daily. Some feel very Chiari-like in nature. Some just feel like migraines (which we all know can be the Chiari manifesting in a sneaky way). I truly cannot distinguish between preexisting health problems, pregnancy and just plain old age related issues. I think they are blending together into this triad of trouble for my poor abused and battered body :P As a side note: I have seen a high risk doc down in Indy with an impressive resume. He seems to think that there is no reason I cannot give birth vaginally. I had both kids fairly quickly and he thinks that if I "labor down" I will only have to push a couple of times and that should not have any effect on my already decompressed Chiari. I should preface this with the fact that I have little to no problems with valsulva maneuvers as long as they are not too prolonged. My OBGYN concurs. My original Cleveland Clinic doc, Dr. Di, is no longer there so I could not ask his opinion but I did get the opinion of his boss which was general anesthesia with C-Section. Keep in mind that this is not commonplace for him since he is the pediatric neurosurgeon and they tend not to have pregnancy concerns. For me, this seems like a very archaic way of thinking. There have been studies, although very very small, that tell a different story in regards to birth and Chiari. Dr. Oro's nurse has a report on the Web of one which demonstrates women having vaginal and epidural births with fantastic outcomes. There are also studies by TCI which say pretty much the same thing although they break it down even further. According to TCI, if you had a small herniation that has been successfully treated and do not have a syrinx, you can attempt a vaginal birth relatively safely. They do however recommend a CINE MRI at 35 weeks to ensure adequate CSF flow before committing to a delivery method. I have not decided if I will have the CINE. I am happy and that is what matters right now. I love my husband. I love my girls. And I love my little monster :))) I wish everyone health, prosperity and a pain free existence!

An Answer! FINALLY!

It's been awhile and a lot has happened! We found a gorgeous home which I am absolutely in awe over. I quit my job because there is nothing worse than having to be someplace that makes you sad and miserable. My husband and I started our own business together :)) Very excited by this!

Now, on to the answer mentioned in the title...

When I was first diagnosed with Chiari, I also received a border line Ehlers-Danlos diagnosis. My new PCP is the most wonderful man! I was having chest pains and shortness of breath. He ordered an echo, which revealed Mitral Valve Prolapse with mild Mitral Valve and Tricuspid Valve insufficiency. Now, I have had 2 echos previously and never has this been mentioned... not sure what that means. As is the case so often, I imagine they were withholding that information because it wasn't anything I needed to worry about. I hate when doctors make decisions for me! Anyway, I had a long talk with my doc and he agreed that EDS was a possibility and sent my med records to the Mayo Clinic at my request. After review, the Mayo doctor (a geneticist)called me and talked to me for about 30 minutes. He said that, after looking over my medical history, he was 100% sure I had a connective tissue disease and almost positive it was either Classical or Hypermobility Ehlers-Danlos. He said he could not diagnose me for sure without seeing me but wanted to go over my expectations should I go to Mayo. FINALLY, an umbrella diagnosis that almost all of my conditions!! It may sound weird to some but I doubt it sounds weird to anyone reading this. After all these years, there is an explanation for the pain and problems that have plagued me most of my adult life. I have found an EDS expert right in my own backyard. He is located in South Bend, IN. His name is Dr. Lavallee. I am currently trying to get an appointment but his office does not have the greatest customer service :( The lady that answers the phone is awesome but I can't get the nurses to call me back.

I will update when I know more.

BIG NEWS...

As many of you know, my family has recently moved. We are in a new town and that means new docs. I have scheduled appointments with a family doc, but also with an OB/GYN and a Neurologist. Both of these doctors are important and will need to work together as my husband and I have made a really big decision... we have decided to try to have a baby again! For those of you who do not know my story, I had a tubal reversal back in 2006. The following year and a half contained two miscarriages and an ectopic pregnancy. We gave up trying due to the emotional toll it took on our family. A month ago, we had a long talk. I love my husband so much. He has no biological children. He longs for a little one to call him "Dad". I am terrified, though. That is why I am seeing the specialists.

I would greatly appreciate any helpful information from those of you who have had pregnancy after diagnosis. I have read that vaginal birth and Epidurals are bad for Chiarians. I have also read they are safe. I am so confused. It appears that the safest form of delivery is general anesthesia and a C Section :(. This is all in the miraculous event of a successful pregnancy...

Please help!

Ahhh... relief :))

Just finished with Thomas, my new massage therapist. He was phenomenal! He beat the crap out of me and I loved it! I feel so much looser with full range of motion again! He is tatooed and married, about my age. He is also legally blind which I think makes him an awesome masseur. Since he cannot rely on his sight, he relies on his sense of feel. Man, it was good :) This town holds so much promise... first, Hinder comes to our county fair and now I find an amazing pain manager! Life is good!

Rain, rain, go away...

Ugh... more drugs last night. These storms are beyond annoying at this point :(

Last night, I showed my husband the blog and explained that I am going to be more active on the site because I believe this is an ingredient in the recipe of my happiness. He brought up a good question: What would someone reading this think about the success or failure of the surgery? So, I feel the need to summarize my health since having the Endoscopic Decompression at the Cleveland Clinic, June 2008.

I still have headaches (obviously) but not everyday like before surgery. Change in barometric pressure cause my headaches now. Prescription migraine medicine (Axert) takes care of them but are very expensive. I also get pain in my spine along with the migraines. A little Ibuprofen takes care of the ache.

My left leg, below the knee, still has peripheral neuropathy. Mostly my foot goes all tingly. Sometimes the tingle is so intense that I cannot think of anything else. Another interesting development is that my foot muscles spasm causing my toes to curl painfully under and get stuck. It feels as intense as a charlie horse in my foot. Maybe that is what it is... not sure but hurts like hell.

The compression of my brain stem and lack of CSF flow caused injury to my Autonomic Nervous System (ANS) called Dysautonomia (diagnosed at the Vanderbilt Clinic). The Dysautonomia comes in many forms; for me it presents as Postural Orthostatic Tachycardia Syndrome (POTS), Sjogrens (dryness of the mucus membranes), slow motility, and Raynaud's Syndrome (circulation issues). There is also argument that Autoimmune Diseases can result from Dysautonomia. I have two; Hashimoto's Thyroiditis (hypothyroidism) and PCOS (Polycystic Ovarian Syndrome). I also have some sort of issue with my muscles but have not had a diagnosis for that yet. They tense up and spasm causing anything from annoyances to crippling pain. My massage therapist has told me numerous times that I am the worst she has ever seen. Awesome.

Medications: T3T4 compound, Pindolol, Prevacid, Miralax, Spironolactone, Evoxac, and Flexeril. For my headaches, I take Axert. About a year ago, I started to drink green tea at least once a night. I have found I no longer get sick. Even if I start to feel a cold coming on, it never develops into full-bore sickness. I believe this is directly related to my intake of the tea.

The worst symptom I deal with, by far, is the fatigue. I am so tired of being tired. I have found that regular daily exercise does combat this. When my doctor first started suggesting this, I wanted to punch him in the face! Didn't he understand how flipping tired I was? How in the heck was I going to muster the strength to exercise when I could hardly muster the strength to get out of bed in the morning? Well, I reluctantly admit he was right. I cannot do much; not nearly the workout a normal person can tolerate. Twenty minutes on the elliptical is about all I can take when it comes to cardio and it took me about three months to work up to that. Since moving out of our house, I haven't been able to exercise and I am suffering for it. The elliptical is in storage. I now do some leg lifts and planks, but it is not cardio and therefore not helping at all with the fatigue. I just want to sleep all the time. Hopefully, I will have my new home soon. We have a workout room in the basement.

I guess what I want folks to take away from this blog is that Endoscopic Decompression probably saved my life. Sure, I have all of these problems, but they are just leftovers of a very serious skeletal deformity. The surgery corrected mother nature's mistake. It stopped the progression and even reversed some of the affects. With the combination of the surgery and correct diagnoses by informed doctors, I now want to live. My life is good and I am happy. Not every day is filled with pain. Actually, the majority of my days are pain free. I cannot ask for anything more.

Finding my happiness.

I haven't updated in almost a year. For the majority of it, my Chiari has been "sleeping". Lately, however, I have noticed some changes. It is funny how soon we forget the pain when it is no longer present; kind of like childbirth. This season has been unbelievably wet and, as most of you are aware, we are extremely sensitive to barometric pressure. I have so many headaches now. This of course leads to the overuse of medication which morphs into a rebound headache. Always a good time.

My husband and I are doing extremely well as a couple. We have recently moved. With the blessing of God, we sold our house back in May and are now in the process of purchasing a new one. Everybody please pray that our selfish government officials do not screw this up for us!

Little update on the Fam: Today is hubby's birthday. We are staying above a pole barn in the country owned by one of hubby's co-workers. They are very nice and will be coming over for birthday cheesecake. My girls are doing great, as well, although I have not seen them for most of the summer. My eldest is driving and my baby will be eleven next month. Good golly I feel old!

Moving to a new town has its difficulties, especially when you have a rare medical condition (or 2 or 3+ as most of us do). I have to find a new doc which is such a tedious process; I just got done training the last one! I think I have found a new massage therapist already, though. Hopefully he is a keeper. My friend and former massage therapist is going to call him and give him the low down on my condition. I told her to make sure he knows how much I like pain. Seriously, if I can't feel it how is it working? If I want to be petted, I will lay next to my husband ;) I will find out on Saturday if my new masseur is any good. Keeping my fingers crossed for some non-medicated relief.

So many things are going on in my life right now. I am searching my soul to find out what makes me happy. I have found myself depressed lately. The other night I cried my eyes out... I was just so sad :( There are so many young people where I work and they are established in their careers and making really good money. I had my brain surgery in June of 2008, went back to school in Dec. 2008, and just graduated last year; I am just beginning my career. I am almost 38 years old and making the same money as the high school fry cook. I am tired and hate the idea of starting from scratch. My husband said, "find something you love and I will support you". He is a great husband! I think what I love most is writing and helping people. Here, on this blog, I can combine both. So, this is me finding my happiness...

Personal Update

Well, I haven't been on in a long time and I have received quite a few comments on the blog so I thought I would update. I finished college in June and now have my BBA in HR Management. YAY! Currently, I work for my old employer on a temp basis. I have a second interview this week at a job that I really want since it is in my field of study. Wish me luck!

I no longer take Protandim and have taken the link down. I developed oozing raw patches all over my face. Finally, the doctor who created Protandim admitted that folks with autoimmune issues should not take Protandim as it amplifies the disease! Fantastic!! I specifically asked the question before I ever tried it and was told it was completely safe to take. It did get rid of my headaches so I won't trash talk it but I am unhappy with the company and its "doctor" for lying to me and making me look like a fool in front of all of you. My relationship with them is finished.

Thank you all for your comments and questions. I am so happy this blog helps so many who are looking for information on an alternative to the hatchet job :)

God bless,
Lori

MIL is hooked!

My mother-in-law has RSD (what Paula Abdul has, it is characterized by chronic debilitating pain - sound familiar?!?) and arthritis and asthma. She has been on Protandim for less than a week and she says it has helped both her arthritis and her asthma!! Awesome!! She said she hasn't had to take near as much asthma meds and this is in a little less than one week of taking the supplement! I am so excited by this! She is an awesome lady! I am going to send a sample to her brother-in-law next. He has scleroderma, which is an autoimmune disease causing tightening of the skin. Hopefully, he will find some relief in Protandim.

Still have free samples left! If interested just click on the link to the left.

Much love,
Lori

Back From Tiff's

Well, I have fabulous news to report! Tiff said that the fascia was completely out of the way and she could get to the knots easily!! Yay Protandim!! She was stunned in disbelief. She told me that she has people come in all the time trying to get her to buy/sell supplements and all natural remedies for pain relief and they are all crap (her words). Tiff said this is the very first time that she has felt palpable proof that a supplement worked in healing the body! She is now trying the six day trial that I am offering to y'all PLUS she is offering my information to all of her clients and has my Protandim newspaper on her practice table. I am so very happy that I will be able to help others :)) I can't wait to start hearing from all of my Chiarian brothers and sisters who have requested samples. They should be receiving them in the mail today!!

Much love
Lori

Dreary Weather, Beautiful Day :))

Well, the weather is horrible here in Northeast Indiana. Lots of rain and overcast. Before Protandim, I would have been in excruciating pain as soon as I woke up (hell, it probably would have woken me up!). After Protandim, I woke up having no idea it was raining till I heard it hitting the house. No pain at all. Not even a shadow of a headache! My poor teenager has inherited my migraines and she woke up in horrible pain :( I think I will start her on Protandim as well.

Talked with Ann Hood again yesterday. She is adding Dr. Di to the list of recommended docs on WACMA! I am very excited about that. I am to call her back tomorrow to discuss my blog and endoscopic decompression. She rocks! Ann is as passionate about getting the word out as I am!

Well, it is off to Tiff, my massage therapist, to see if Protandim has helped my muscles again. I will post when I return :)

Much love
Lori

Quick Update...

Well, it is raining here in northern Indiana this morning. Normally, rain would equal misery because I would have a raging headache thanks to the weather and barometric pressure change. But, guess what, I don't even have a hint of pain! NONE! I love Protandim :))))

I also want to send love to Rich who just flew out to San Fransisco to perform a couple concerts! He took his parents with him :) Isn't that sweet? He's adorable! Anyway, he has a Protandim meeting over there as well so I cannot wait to see what info he brings back for me! Let's all send good thoughts his way for a successful concert and meeting. If you're in the San Fransisco area look up Rich Hardesty and check out his concert. If you have any Protandim questions, I know he would be happy to talk with you :)

Here is to a pain free day for all of you,
God Bless!
Lori

Protandim Arrived!

I have mailed out the samples to all those that asked :)) I am so excited to hear your experiences. If there are any other Chiarians that would like to try Protandim for free, just send me an address and I will get it to you. This is truly exciting for our community!!

Conversation with Ann Hood (WACMA)

I wanted to tell y'all about my conversation with Ann Hood (WACMA - Chip's sister). Many of you, if not all of you, are members of WACMA so I am sure you know who Ann is. Anyway, I talked with her last Friday regarding getting the message out to Chiarians about endoscopic decompression. I had noticed on WACMA, that all the info was really about the old school zipperhead surgery. First, let me tell you that she is one great lady! She was a hoot! We talked about exactly what endoscopic decompression is and who qualifies for the surgery. She was very interested in what I had to say. I told her that the leading Chiari doctors (Oro and TCI) don't promote it because there is no money in a surgery they cannot perform. Endoscopic surgery takes amazing skills and tedious training. It is hard to perform brain surgery on a TV screen! Dr. Di developed some of the instruments he uses in the surgery because it is so new they didn't exist. Ann said she was going to shoot one of the TCI docs an email to ask why they do not provide the choice of a much less invasive decompression with a much quicker recovery time and a shorter hospital stay (24 hours for me!)! Isn't that awesome! Ann will get us some answers :) I just love this lady!! She was so supportive. She is going to put a link to my blog on WACMA's site!! How cool is that? She had to go out of town for a week but I am to call her next weekend to go over what TCI said and to see how else she can help me spread the word. She gave me contact names of key players from other sites and I am going to contact them to see if they would be willing to help educate our community on the endoscopic alternative. I started this blog to help my Chiarian community. Between having Ann on my side, this blog's success, and Protandim, I am realizing my dream of paying it forward! Here is to all of those who helped me get well, now I am well enough to help others... full circle :)))

Life is good!
Lori

Update On Samples...

For all of you who have written me requesting a sample, it did not arrive this weekend. I am hoping that it will be here Monday. Oh, and one more thing, I found out the easiest way to get it to you is to send it regular mail in an envelope which only requires a stamp. This means I will not need reimbursed for shipping it to you. I thought it was gonna be a bigger deal shipping it since it is a pill, but Rich just sent my six pills wrapped in a paper towel in a 44 cent stamped envelope. Works for me! I can afford a book of stamps, LOL :))

FYI, I still have samples left if anyone is interested. What harm is there in trying something that may relieve some of your symptoms and give you better quality sleep which in turn makes you feel more energetic and alive? Especially when that something is all natural and FREE!! I plan on following those who are trying out the samples, as much as they will allow, and reporting it on here. Hopefully, Protandim will make as big of a difference in their lives as it did mine!! I am so happy God has afforded me a way to help my Chiari community! I feel so useful now! So many years wasted, sitting on a couch, feeling useless and helpless. Now, I have the power to take control of my own life and the blessed opportunity to make a difference in the lives of others!

I had a lady contact me from Florida who has requested a sample of Protandim. She is in bad shape and nothing seems to have helped her. Her husband even reached out to me! How beautiful is that!! You could feel the love he put into the email. Anyway, Rich (the Singer) will be in Florida in the next month or two and if all goes well with the six day experiment, the couple who wrote me want to meet with Rich. That is why Rich will be down there, he is talking with a group of folks down there who are interested in Protandim. So, my point is this, if any of my readers are from Florida and would like to meet Rich and talk with him about what the supplement is and what it can do for them, just let me know and I will make sure you meet! He is a very kind man and getting the word out about Protandim is his passion. He believes so strongly on the healing agents in this supplement. So do I, as I have witnessed it for myself! The weather is horrible here in Indiana. It is raining and overcast, I should be a throbbing painful mess. But I am not. Can only attribute that to Protandim! I am so excited for those of you who are trying it!! I cannot wait to read your take of the supplement!

My little experiment...

Ok, so I am performing a little experiment on my body. I stopped taking Protandim two weeks ago and went to the massage therapist last Tuesday. She was in awe at how tight my fascia was; the muscle knots wouldn't budge. (This is in sharp contrast to when I was on the Protandim and my usually cement muscles were more like molding clay!) According to her, I am a mess! Thanks Tiff!! Anyway, the Singer sent me six pills till my order could get here. I received his pills yesterday and started taking them immediately. Now, keep in mind that I have had non-stop daily headaches for the last week and a half or so - ever since I ran out of Protandim. Well, took Protandim last night and guess what?!? NO HEADACHE THIS MORNING! I swear God put the Singer in my path to deliver this miracle to end my suffering. More importantly, it has always been my dream to give something back; to help my community in some way. Now I have that opportunity. It is a dream come true :) Anyway, my experiment is to go back on Tuesday after 6 days on the supplement and see what she feels. She is also in on the experiment. As I mentioned before, she is going to display info at her massage business and advice her medical clients about Protandim. She is eager to see the miracle repeated.

By the way, I am tired of typing "The Singer" so I asked him if I could use his real name on my blog. He said absolutely. I haven't thus far because this man makes his living with his voice and name (his band has his name) and I didn't want to do or say anything to jeopardize that. My decision, not his. Anyway, his name is Rich Hardesty. You can google his name and find out all about him. He is sort of a free spirit, lol! Google him and you will see what I mean. He is the friend that gave me my first bottle of Protandim. It cost him money, but he did it out of the kindness of his heart and his compassion for humanity. I told him about our condition and the daily pain that comes with it. He knew he had something that could potentially help me, so he shared his private stash. He has a big heart :)

Rich texted me about this girl he met who has a suprasellar arachnoid cyst that she has had since she was three. Arachnoid cysts are found in folks with Chiari due to the build up of cerebral spinal fluid. Anyway, Rich turned her on to Protandim and she is excited to give it a try. He asked if I would talk to her, which of course I agreed to. Everyone needs someone, and while our disorders are different, they are close enough to relate with each others' struggles. Some of you out there may actually have arachnoid cysts, so you could probably totally relate. I told Rich that I want to hear her updates because it directly affects our Chiari community. I cannot wait to see what Protandim does for her! I will keep you posted on both her experience and what Tiff (my massage therapist) finds next Tuesday when she is trying to break through the cement wall that are my back muscles.

Much love!
Lori

PS I am so excited for all of you that are requesting the samples! My order should be delivered tomorrow, possibly Sat. I will send them out to you as soon as I get them! Just remember to keep my posted on your experience!! I can't wait to hear what Protandim has done for you in the short six days you will be trying it :)))

Clarification

I seem to have confused some of you as to where to get Protandim. I have recieved a few emails asking which stores carry it. Unfortunately, none that I am aware of. First, I strongly suggest you take me up on my offer to send you a 6 day trial of the supplement. Why spend money on something unless you know it will work for you? If you do want to purchase an entire bottle, you can get it by following the link to the left (or clicking on "Protandim") and clicking shop or enroll. There is a wealth of knowledge within the link that you can view, including a Prime Time live report on Protandim. I know they sell Protandim on ebay (just be careful). I think that is about it. If you want more information on Protandim, send me your name and number and I would be happy to have the Singer talk with you. He is a love :) He is only in this to help people after he saw what it did for his mom (who has MS) and his dad (who has a brain tumor). He is a good man who is sacrificing a great deal to support his parents. He moved back home from Los Angeles to Indiana to take care of them and uses a great deal of his own money (he has a successful singing career and a cult following from college students) to support them. How many men do you know that would put their dreams on hold to take care of their ailing parents?

The Singer is the one who gave me my first bottle because he felt sorry for me, lol. (I am pathetic when I am in pain :) After taking Protandim for a month I was astonished at how fantastic I felt. The most amazing thing by far was the complete and utter lack of headaches!! When I found out that you can only get the supplement from a distributor (basically you have to know somebody who knows somebody), I decided the best way to get it to my Chiari community was to become a distributor. I didn't do it for the money, it actually cost me quite a bit to become one and sales is not my thing. I simply did it to offer y'all an easy way to get your hands on a supplement that could potentially help you to feel better like it did for me! If you don't want to buy it from me then buy it someplace else, please just try it! Take advantage of my free samples! I implore you because I know what it is to suffer endlessly, without hope.

What a miracle Protandim has been in my life! When I am taking it, I am no longer in pain. I feel no aches or throbbing or burning in my shoulders and neck. I feel so unbelievably normal, like I don't have this horrible affliction known as Chiari. I feel 20 again :))))

Supplement revealed!!!

The name of the supplement is Protandim!! Changes I noticed whilst being on Protandim: complete cessation of headaches, better quality sleep, higher energy levels, lessening of my peripheral neuropathy in my foot, and my skin cleared up and softened! Another unexpected miracle is my fascia released (tight fascia caused debilitating pain in upper back and neck)!!! My massage therapist has been working for over a year to get through my fascia which she says is so tight that it distorts my muscles into horrible knots. She said I am the worst case she has ever seen. She was about to send me to a specialist in fascia release so that she could get to the knots. Two weeks into the Protandim experiment, she got through easily! My knots were almost none existent! How can that be?!? I have suffered for years!! I have no idea how, but the Protandim is the only thing that I had changed. My massage lady is so impressed (she works almost exclusively with medical massage), that she is going to tell all her clients about my story and Protandim. She has asked me to drop off information that she can copy and hand out to them, as well as leave in the waiting room of her business. How cool is that! She is amazed at the difference she sees in me after taking the supplement.

After talking with my husband about Protandim and the miracle it has been in my life, he decided to fund my distributorship. I am very excited. I already have half the town were I live ready to try it! They have seen the difference it has made for me. If you want to get it somewhere else, please do! Just get it! Try it! You will not believe how differently you feel, even within a week! There is a link to the left which offers more information for those interested.

Personally, I would have never bought it if the Singer hadn't sent me home with a bottle. So I am offering the same to all of you; a free sample (now I can't give out a whole bottle to everyone, but I will give out a 6 day trial sample which is all you will need to see a difference)! If you want to give it a whirl to see if it changes your life as it did mine, or you have any questions regarding Protandim, just email me direct. If you want the sample; send your name, address, phone number and a brief description of why you want to try Protandim. I get a few free bottles so I will divvy them up and send them out to my Chiari family. Pay it forward, I believe is the expression. I do ask that you pay for whatever it takes to get them to you. I am not a rich woman, lol, and I am assuming that I will have a lot of takers.


Unfortunately, I ran out of the supplement a little over a week ago. The headaches are back, fierce and daily. I had forgotten what it was to be in chronic pain :( I have taken almost all of my Axert (migraine med) because the weather keeps changing and that is always a trigger. When I was on the Protandim, I had no headaches! NONE! Not even migraines with weather change! Since stopping the Protandim, my massage therapist says I am right back to the tight fascia and muscle knots :(( I am in so much pain. This is the reason I am a week late in reporting my findings to y'all. It is hard to think past the headaches, but I am preaching to the choir.. you are the one group of folks whom I know can understand. I can't wait to get my new bottle of Protandim! I want to be a normal, functioning human being again :)))

Love to you all!
Lori